Sunday, December 13, 2009

Hey Everybody...
   We have been so busy since we brought Parker home that we have not had alot of time to update our blog!  When we were at MUSC we had the best babysitters around that gave us more of an opportunity to write.  Since we have been home Parker had his first follow-up appointment with his cardiologist this past Friday.  Parker weighed 10 lbs. 1 oz.  They did an ultrasound on Parker and everything looked great.  He still has fluid in his lungs, but there was no fluid present on, around or in between his lungs and heart what so ever!  The cardiologist did let us know that he would remain on Lasiks until the fluid in his lungs goes away.  Parker has been more fussy since we brought him home, and more demanding with his feeds!  THANK YOU JESUS!!!  We are sooo happy that he is finally eating.  Parker is now taking 4 to 5 ounces at each feed...with NO EPISODES!  He has reached a new goal, and we are thrilled!  We go tomorrow for a follow-up with his pediatrician, so we are hoping and praying for more weight gain.  Parker will continue to be on a special 27 calorie diet until his weight increases on a more consistant basis.  You know us heart babies have to write our own chapter on the "new normal"!   Sorry that it has taken a few days to update! I will be posting some more pics that I took of Parker today...he looks so cute!  Please continue to pray for our friends the Gordon's.  We found out that they actually buried Christopher on his birthday today.  Pretty tough stuff.  Also our friends the Carter family.  Their baby, Derrick, will go for a heart cath at MUSC on December 23, 2009.  Pray that all of the doctors and nurses involved will have the ability to give Derrick the best care possible, and that his little body will accept the treatment and have a speedy recovery!  Please remember their family this holiday season.  It's never any fun to be at the hospital during the holidays. We love you all and will update as soon as Parker allows us!!!
Love In Christ
The Crafts

4 comments:

  1. We will continue to pray for all. Parker looks wonderful! Thank you Jesus for your love, healing and daily strength for this family. Thanks for the updates.

    The Hunt's

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  2. I can't wait to get my hands on Parker:) You know me, self proclaimed BABY HOG!!!! Let me know if you all need anything. Love the proctors

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  3. Praise God!!!! I am so glad that he is doing so good. He looks beautiful and very healthy to me. Glad ya'll are home.

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  4. Great to hear the good news and yes we will continue to pray for everybody. Please let us know if there is anything we can do. Amy if you need to get out of the house while you have someone there, call me and we can go for dinner or something(I could meet you somewhere). Thanks for the updates, look forward to reading them.

    Love the Shulls

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