Hey Everybody...
Who's ready to eat a really great breakfast for a really awesome cause? Hope for Brave Hearts is back in high demand. I am having some issues uploading our flyer...so what I am going to give you a blog to go to for all of the details that you will need for the breakfast on Saturday. The blog is: carolinacarters.blogspot.com !!!! I hope that you all will be able to make it to eat with us! Thanks for all of your support over the last few years....And we look forward to seeing you all there.
Love In Christ...
The Crafts
Please keep Parker in your prayers...we get our casts back on tomorrow and he is not feeling the best in the world. He has a cold with a constant runny nose and is starting to cough.....
Thursday, February 9, 2012
Wednesday, January 25, 2012
I Find You When I Fall Apart......
Hey Everybody...
Have you ever had a day when your riding around in your car and the most perfect song comes on the radio....one that proves how God loves us So Much! Well I had that moment yesterday and thought that I would share. You have to youtube: Josh Wilson "Fall Apart" ! You may have already heard it but...this is my life song! Anyway...we took Parker to see a new specialist, one that we have been waiting to see for almost six months now....but I like him a lot. Dr. Seigel is a specialist in Cerebral Palsy patients. Parker, as you all know, has been in so many different casts, molds, taping and braces for his tone in his body, and continues to have to this very day. So you may ask yourself.... what in the world would Parker need to see a doctor who specializes in this for? Well, Cerebral Palsy has three different levels....and we have MILD Cerebral Palsy. Cerebral meaning "Brain" ...and we all know how complex Parker's brain is....and Palsy meaning "motion/movement"...which we all know Parker is very capable of getting himself from point A to point B! We will not wake up one morning and have our lives turned upside down, not able to speak, or be wheelchair bound. What we have now is what it is going to be. Praise God! Now...this is only due to the tone in his lower body. Parker has always been somewhat rigid in his legs/ankles since he was trying his best to crawl. If you remember, way back when, Parker had therapists that would come to our house because he was dragging one side of his body for the longest time and we couldn't figure out why. So Parker conquered that! He had a fists balled up for the longest time also and with the help of his Savior worked it out too....So this brings us to walking/running. He is running everywhere! But he also falls a good bit and needs some help with his balance and tone. So....we are going to be putting him back in casts Friday and one week after that we will be getting our new braces again. This is not easy for Parker and it stresses him so much so we are asking that you say an extra prayer for him this week as we prepare for this. Please know that we are so thankful to be able to write on this blog and know that prayers have been started and answered here! What a blessing! Our God is so merciful and knows our every need...and we are so blessed to speak His name.
Love In Christ
The Crafts
Have you ever had a day when your riding around in your car and the most perfect song comes on the radio....one that proves how God loves us So Much! Well I had that moment yesterday and thought that I would share. You have to youtube: Josh Wilson "Fall Apart" ! You may have already heard it but...this is my life song! Anyway...we took Parker to see a new specialist, one that we have been waiting to see for almost six months now....but I like him a lot. Dr. Seigel is a specialist in Cerebral Palsy patients. Parker, as you all know, has been in so many different casts, molds, taping and braces for his tone in his body, and continues to have to this very day. So you may ask yourself.... what in the world would Parker need to see a doctor who specializes in this for? Well, Cerebral Palsy has three different levels....and we have MILD Cerebral Palsy. Cerebral meaning "Brain" ...and we all know how complex Parker's brain is....and Palsy meaning "motion/movement"...which we all know Parker is very capable of getting himself from point A to point B! We will not wake up one morning and have our lives turned upside down, not able to speak, or be wheelchair bound. What we have now is what it is going to be. Praise God! Now...this is only due to the tone in his lower body. Parker has always been somewhat rigid in his legs/ankles since he was trying his best to crawl. If you remember, way back when, Parker had therapists that would come to our house because he was dragging one side of his body for the longest time and we couldn't figure out why. So Parker conquered that! He had a fists balled up for the longest time also and with the help of his Savior worked it out too....So this brings us to walking/running. He is running everywhere! But he also falls a good bit and needs some help with his balance and tone. So....we are going to be putting him back in casts Friday and one week after that we will be getting our new braces again. This is not easy for Parker and it stresses him so much so we are asking that you say an extra prayer for him this week as we prepare for this. Please know that we are so thankful to be able to write on this blog and know that prayers have been started and answered here! What a blessing! Our God is so merciful and knows our every need...and we are so blessed to speak His name.
Love In Christ
The Crafts
Wednesday, December 28, 2011
Saturday, November 26, 2011
Monday, October 31, 2011
Saturday, October 29, 2011
Coming off the meds....
Hey Everybody...
I wanted to give a quick update on where we were on Parker. We have been waiting to update anything about the doctors visits because all of the results were not in. I spoke with our neurologist about all of the MR's that we just did and they found that Parker is completely missing his left transverse sinus. Which means that the right side is making up for what the left side lacks! But still does not mean anything towards a diagnosis for our unanswered questions. The transverse sinus is the plumbing for your brain, so the right side is larger, since there is no left, but is still not pressing on anything important that would cause all the chaos! They did see some scarring on the fluid filled spaces in his right ventricle...but yet again...is not pressing on anything of importance. So, we have decided to come off the medicine for now and see what happens. A little scary I know, but if we don't have a diagnosis then we don't need to be medicating the unknown. We are hoping and praying everyday that we have made the best decision for Parker. Our pediatrician is completely on board with this decision, but is not finished digging deeper for Parker. He is requesting all of Parkers' medical records from the hospital to be sent to MUSC for further review, and second opinion from one of the leading pediatric neurologist. The last time we saw him was only about the fluid and he has no clue what we have been through with these "episodes"! So this will give us a fresh set of eyes and another opinion...but maybe this time we might find an answer. Anyway, in the meantime, I have been extremely busy at work, as well as home with my photography side jobs. Please take a look at my blog if you get a moment and check out some of the pics at acraftphotography.blogspot.com! Parker decided that he needed to try on his sissy's nerd glasses for Halloween, and we have enjoyed his little personality...he is so stinkin' cute! Please be much in prayer for Parker as he comes off this medicine that no scary episodes will occur, and please remember our friends at carolinacarters.blogspot.com as their sweet baby girl is awaiting some test results. We will be praying for sweet baby Jenny Kate to feel better real soon. We thank God for all of our precious blessings, big and small tonight...and thank you for remembering us in your prayers.
Love In Christ,
The Crafts
I wanted to give a quick update on where we were on Parker. We have been waiting to update anything about the doctors visits because all of the results were not in. I spoke with our neurologist about all of the MR's that we just did and they found that Parker is completely missing his left transverse sinus. Which means that the right side is making up for what the left side lacks! But still does not mean anything towards a diagnosis for our unanswered questions. The transverse sinus is the plumbing for your brain, so the right side is larger, since there is no left, but is still not pressing on anything important that would cause all the chaos! They did see some scarring on the fluid filled spaces in his right ventricle...but yet again...is not pressing on anything of importance. So, we have decided to come off the medicine for now and see what happens. A little scary I know, but if we don't have a diagnosis then we don't need to be medicating the unknown. We are hoping and praying everyday that we have made the best decision for Parker. Our pediatrician is completely on board with this decision, but is not finished digging deeper for Parker. He is requesting all of Parkers' medical records from the hospital to be sent to MUSC for further review, and second opinion from one of the leading pediatric neurologist. The last time we saw him was only about the fluid and he has no clue what we have been through with these "episodes"! So this will give us a fresh set of eyes and another opinion...but maybe this time we might find an answer. Anyway, in the meantime, I have been extremely busy at work, as well as home with my photography side jobs. Please take a look at my blog if you get a moment and check out some of the pics at acraftphotography.blogspot.com! Parker decided that he needed to try on his sissy's nerd glasses for Halloween, and we have enjoyed his little personality...he is so stinkin' cute! Please be much in prayer for Parker as he comes off this medicine that no scary episodes will occur, and please remember our friends at carolinacarters.blogspot.com as their sweet baby girl is awaiting some test results. We will be praying for sweet baby Jenny Kate to feel better real soon. We thank God for all of our precious blessings, big and small tonight...and thank you for remembering us in your prayers.
Love In Christ,
The Crafts
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