Sunday, January 31, 2010

Come Eat Pancakes with Parker

Hey Everybody...
 
       I posted the ad that I made up for this weekend's breakfast below this post!  Please make sure that you scroll down for all of the info!  Not to mention...the look on Parker's face is soooo cute!  This is the first annual CHD (Congenital Heart Defect) awareness breakfast, and all of the proceeds with go directly to MUSC Children's Hospital for research.  What a great cause!  I really hope that all of you will be able to come and eat with us.  If you would like to purchase tickets from me I have them.  If you are not able to get to me before the breakfast then please just show up!  The more the better!  Bring everyone you know! -----

     Parker had another follow up with his cardiologist on Friday and it went great!  They did a follow-up ultrasound of Parker's heart and everything looks great!  The cardiologist did see the residual hole that we already knew about, but like they said "it's like a spit in the ocean", so no worries!  Parker weighs 13.5 lbs and is 25 3/4 inches long!  He has gained 2 lbs in one month.   The most ever on his record!  His doctor was way excited about his weight gain.   We are officially off of Lasiks!  Thank you Jesus!!!  Parker is spitting now and you know where I am going with this....oh yes....he loves to spit those nasty meds out!  We also were told that he would need to only see us once every 3 months now.  Yes... this is a little scary when we've been checking in every other week.  But if we see anything weird we have been told to make an appointment immediately!  So only 4 appointments per year for now.  And I am okay with that!  This means that we have more white on our calendars....and this excites me! 

     Parker's pediatrician examined him on Friday as well and was just as pleased with his weight gain as the cardiologist.  Parker had another shot and oh boy was that some fun!  Yeah!   We are waiting to find out if we need to have an appointment with a neurologist for his "still moments", so I will keep you all updated about that!

     Please know that we are so appreciative for all of your uplifting words of encouragement!  You have carried us through our journey and continue to write in with concern for our little man.   This means the world to us!  The family and friendships that we have with all of you is just too much to put into words when it comes to Parker!  He is such a blessing to all of us and has forever changed us all.  With each passing day there is not a moment that goes by I don't thank my Lord Jesus Christ for the little hands and feet that I see before me.  The smile on his face at 3 in the morning, the drool that runs down his cheek and all of the diapers that come with being a baby.  Don't think for one second my day is taken for granted....because I know in my heart that things could have been very different!  God gave us a second chance and I won't waste one moment to kiss his face, hold his sweet little hand and read bedtime stories.  To hear my baby cry in the next room is the most beautiful song ever written.  We love you all and thanks for your loving support.
Love in Christ...
The Crafts

Pancakes with Parker

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Monday, January 25, 2010

Look at Parker Grow!




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Sunday, January 24, 2010

My Strips are Gone!!!

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Hey Everyone...
          I called MUSC on Tuesday morning because Parker's steri strips on his incision were still holding on for dear life, and had not fallen off since his surgery.  One of Parker's nurses on Seven-C told me that I would need to get them off myself since they should have long been off on their own.  I have to be honest...this was not something I was looking forward to.  "Dread" is the first word that comes to my mind.  Parker's nurse let me know that they made a group decision to have me give him his first "real bath".  I say this because Parker has only had sits baths since his surgery.  Until now they were very concerned about any dirty water near his incision that would cause any type of infection.  Still yet another thing that made me very nervous!  Parker's nurse asked that I soak him in a warm, yet soapy bath to loosen his steri stips.  They reassured me that this would loosen them up enough to not pull so much when they came off.  So... it really took me until last night to get the nerve up to pull them off myself.  Remember they told me this Tuesday and last night was Saturday.  Yeh!  But I was "working" last week...give a mom a break!  Procrastination.....I know.   Without another day sliding by, I decided that it's now or never.  And  boy were they Nasty!  Since Parker has been drooling so much lately it had caused his strips to adhere even more.  Not fun for mom!  But at times like these you do what you have to, grin and bare it!  Parker did really well!  He really likes being in the water!  And just as they had reassured me, the good ole soapy water did the trick!  After about twenty minutes they were all off!  They did pull a good bit, but not enough for me to not want to do it without any assistance!  As you can see Parker's incision looks great!  We have another follow-up appointment with the cardiologist on Friday.  Also we will be at the pediatrician for yet another shot!  But after conquering open heart surgery at 3 months of age...Parker says "What's a little shot....bring it on!"  Yeah right!  You all know that shots are no fun, so please say a little prayer for our little man on Friday.  And...Parker's heart friend Derrick did great through his open heart surgery last Monday and is continuing to recover with each passing day.  Please remember to keep Derrick and his family in your prayers as well!  We love you all and will post more pictures as we continue our journey! 
Love In Christ,
T he Crafts

These Strips Just Won't Come Off!!



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Wednesday, January 13, 2010

How Great is Our God!

Hey Everybody...
    I wanted to let you all know that Parker is doing so good!  We had a follow-up with our Neurosurgeon today and he has released us from his care!  Oh how wonderful!!! We are so very excited that Parker's brain is fully developed and that it will not require any form of surgery.  I did let Dr. Smith know this morning that Parker is having some "quiet moments" where he will be playing and all of a sudden he will get real still for about 5-8 seconds, but then continues to play.  He let us know that we may want to explore the avenue of a neurologist to rule out any silent seizures that he may be experiencing.  Dr. Smith told us that they have an EEG that they would send Parker home with for 24 hours to see if it picks up any information.  Other than that, Parker is A-Okay!!! Dr. Smith is not at all concerned about Parker's dialated ventricle.  He said that all babies have different sized ventricles and maybe the fluid in Parker's ventricle is supposed to be there.  So....overall we have a very good prognosis for today, and boy will we take it!  We also saw our cardiologist today for a recheck of his pulse ox and it was 98%!  Parker still looks somewhat blue in his face and we wanted to rule out any possibilities of misdiagnosis.  Parker's doctor reassured us today that if it was still a heart related issue then Parker would have right to left shunting not left to right shunting.  So with that said, it is only his veins and thin skin at this point that are keeping him blue!  Please continue to pray for Parker.  I actually started back to work last week full time and boy am I thriving on my "cup of Joe"!   I am up with Parker every 2-3 hours still through the night and have hit the ground running every morning.  Thankfully my job is a full day Monday-Wednesday and a half day on Thursday.... so for the most part I am catching up on my sleep through the weekend!  Parker is staying with his grandma now while I am hard at work and boy is she enjoying that.  We are so blessed not having to take him to a daycare!  Parker has found his tongue this past week and is starting to blow bubbles.  He LOVES the T.V.!  SOOOO FUNNY!  And he loves to be read to!  He really sits and listens to the book from start to finish...although he is learning to grab the book and close it for himself whenever he wants.  I guess that's his way of saying he's heard ENOUGH!  Sorry that it has taken so long to post but today was our first appointment in a while.  Please keep baby Derrick in your prayers for he undergoes his second open heart surgery this Monday at 7am at MUSC!  Our prayers will definitely be with them and the surgical team that everything goes as expected!  We love you all and are so thankful for all of our little blessings today!
Love In Christ
The Crafts

Tuesday, January 12, 2010

Sunday, January 3, 2010

Look at me Growing!




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