Saturday, October 29, 2011

Coming off the meds....

Hey Everybody...
I wanted to give a quick update on where we were on Parker.  We have been waiting to update anything about the doctors visits because all of the results were not in.  I spoke with our neurologist about all of the MR's that we just did and they found that Parker is completely missing his left transverse sinus.  Which means that the right side is making up for what the left side lacks!  But still does not mean anything towards a diagnosis for our unanswered questions.  The transverse sinus is the plumbing for your brain, so the right side is larger, since there is no left, but is still not pressing on anything important that would cause all the chaos!  They did see some scarring on the fluid filled spaces in his right ventricle...but yet not pressing on anything of importance.  So, we have decided to come off the medicine for now and see what happens.  A little scary I know, but if we don't have a diagnosis then we don't need to be medicating the unknown.  We are hoping and praying everyday that we have made the best decision for Parker.  Our pediatrician is completely on board with this decision, but is not finished digging deeper for Parker.  He is requesting all of Parkers' medical records from the hospital to be sent to MUSC for further review, and second opinion from one of the leading pediatric neurologist.  The last time we saw him was only about the fluid and he has no clue what we have been through with these "episodes"!   So this will give us a fresh set of eyes and another opinion...but maybe this time we might find an answer.  Anyway, in the meantime, I have been extremely busy at work, as well as home with my photography side jobs.  Please take a look at my blog if you get a moment and check out some of the pics at!  Parker decided that he needed to try on his sissy's nerd glasses for Halloween, and we have enjoyed his little personality...he is so stinkin' cute!  Please be much in prayer for Parker as he comes off this medicine that no scary episodes will occur, and please remember our friends at as their sweet baby girl is awaiting some test results.  We will be praying for sweet baby Jenny Kate to feel better real soon.  We thank God for all of our precious blessings, big and small tonight...and thank you for remembering us in your prayers.
Love In Christ,
The Crafts
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