Saturday, October 9, 2010

On the road again...

Hey Everybody...
We are overjoyed to have my brother Stephen home from the NAVY even if it is only a week.  When Parker saw Stephen for the first time, he waved at him, smiled and went right to him.  It was such a sweet little moment.  Not to mention Parker looks so much like Stephen as a child...it's uncanny at times.  It's not easy seeing him once a year, but we are thankful to God for keeping him safe enough to come home.  I wanted to remind you all that Parker has an appointment at MUSC on Monday at the Storm Eye Institute!  We are going for a second opinion in regards to his eye surgery.  Our physical therapist said that she may want to try some type of therapy before eye surgery, but nothing has been set up for that yet. Hopefully while we are at MUSC we will be able to drop off Parker's MRI to their doctor of radiology for a third opinion....since our first and second seem to be confusing themselves with misinformation!!!  Anyway...we are going to be stopping by 7-C and the PCICU to deliver jack-o-lantern's full of chocolate candies for the nurses and doctors that assisted Parker in his recovery!  It is simply amazing to look back at where we were this time last year.  I remember with tear filled eyes of a baby that was struggling for his life daily, retractive breathing, race running heart issues, feedings through a syringe with tubing, $96.00 for 96 ounces of formula (aka Starbucks for Babies),of which Parker only held down 15cc's per feeding and would fall asleep with total exhaustion, loss of weight daily, jaundice so bad that he looked like a Clemson Tiger, bilirubin checks, trips to the hospital twice weekly for full blood panels for liver checks, weekly trips to our cardiologists, our first visit with our neurosurgeon, pulmonary synagis shots for lung weakness, the big switch for a new "christian" pediatrician with the help from our dear friends, while still trying to make the three month mark for open heart surgery fighting a loosing battle with the weight gain of ten pounds!  When I think back on these times and remember the frustration as a parents trying to make the best decisions for our son, I can't help but thank God for all of the unwanted stress and pain that it put us through.  God took an opportunity to strengthen our walk with him through our son and guess what....it worked!  It is such a mystery to me looking back at God's plans thus far.  And it is when you look back you see His perfect plan and say "Oh so that's why that happened....and it all makes sense doesn't it?".  The peace of God is unremarkable to me!  It is so perfect that it simply leaves you speechless.  Please be in prayer for us as we embark on yet another specialist in hopes to gain new options for Parker's eyes, for traveling mercy's as we travel down the most dangerous stretch of interstate in our country and that we will find the doctor of radiology that will be willing to review Parker's test results for a third opinion.
Love In Christ,
The Crafts

1 comment: