wakp10

Hey Everybody...
I have been waiting to post updates on Parker's neurosurgery appointment because we haven't received the final word from the head radiologist at MUSC, so....I will just tell you what we know thus far.  I have to be completely honest when I say that I love this new doctor.  He was like a breath of fresh air.  The trip down to Charleston was nice, because our schedules seem to hardly meet up with all of Parker's appointments and work schedules, so we actually had time to talk and catch up while Parker slept in the back seat. When we got there, of course everyone was so welcoming!  And we didn't have much of a wait to see Dr. Glazier, which we so appreciated.  After reviewing Parker's MR's, Dr. Glazier said that in his professional opinion, he did not see any reason to scan Parker anymore!!!!!  MUSIC TO OUR EARS!!!  He said that there is no getting around the fact that Parker's brain is complex and that the ventricles are still dilated, but he said that they are showing no sign of growth in those areas, which is great!  His primary concern for Parker is his blueness that he still exhibits.  Now, we have been to so many different specialists that have tried to figure out why he is still so blue, and no one has been able to answer that yet.  Dr. Glazier said that if the right side of Parker's heart has a higher pressure than the left side then it would in return give his face the flush of blueness that we see.  Interesting Right?!  So he still wants to get the head radiologist to double check all of Parker's MR's before he gives a final say on the brain abnormalities.  And he is going to check with Dr. Bradley in regards to his blueness to see what pressures Parkers' heart was giving during his surgery last December.  He said that would tell us a lot!  I am so excited to finally get an answer from someone that seems to have it all together.  Like I said earlier, we are still waiting on a call from MUSC, but I feel confident that it will be a good one.  You know this time last year we were two weeks shy of almost loosing Parker.  He had lost so much weight and had feeding tubes sticking out of his sweet little nose.  Not to mention he stopped breathing several times at the Children's Hospital and had to be "bagged" for that.  What a little fighter he is though!  God's hand is so mighty isn't it?  He says that He is Mighty to SAVE!  I know that he not only saved our little man this time last year, but He was saving us right along with him, taking us deeper in our Faith with Him.  And I can not thank God enough for the little man that is sitting up in his crib, after a long nights sleep, blowing me kisses from the room across the hall, and saying Ma Ma right now!  I cry just thinking about how different our lives could have been and know that God is Mighty to save and He is worthy of all of My Praises!  Parker has a night light in his bedroom that shines on our ceiling  from his room.  And some of us would look at that light and say, close that door a little so the light won't shine in my face while I sleep.  But I have to say every time I see the light from Parker's room I see and feel the presence of God illuminating the ceiling and how it pours over on me like the crashing waves of the ocean.  I can almost hear Him say "See, I told you everything was going to be okay".  We are so much closer to God now than we thought we were three years ago.   And I think it is fair to say that we would we have picked another way to wake us up and take us deeper in faith besides a stressful pregnancy and open heart surgery on a four month old baby boy....SURE!  But God plans are always BIGGER!  And as we look back it puts a smile on both of our faces because we know now just how perfect that plan was!
Love In Christ,
The Crafts