wakp10

Good Morning Everyone....
It is 3:56 am and about 30 minutes ago Parker's feeding was completed and his machine was beeping.  When I got up to silence his alarm I noticed that Parker had successfully pulled his NG tube completely out of his stomach.  All of Parker's food for his 3:00 am feed was on the bed.  As soon as I noticed it was out, I turned the lamp on and looked down at him and said "Did you pull that out all by yourself?." He just looked right at me and smiled!  Little does he know that it has to go right back in!!!  I asked the nurse to please give him something to help calm him before they inserted the feeding tube and she gave him some Tylenol to help soothe him.  Well.....Parker is crying right now so as of 4:01 the NG tube has been re-established.  This is the hardest thing that I have ever had to do.  Not to mention exhausting mentally and physically.  As a parent, you never want your child to hurt for anything.  It is so hard to sit and listen to him cry and struggle to breathe.  I know full well that God has a plan for Parker and that we are where we need to be...no matter the pain.  We live by the verse Deuteronomy 31:6....."Be strong and courageous.  Do not be afraid or terrified, for the Lord your God goes with you wherever you go, He will not leave you nor forsake you."  How wonderful it is to know that His word is true!!!  Thank you all for your love and support.  Your continuous prayers are always felt.  This is just the beginning of our walk with Parker.  His life has been such a blessing to all of us.  As hard as it is for us as parents....we wouldn't change it for the world!  Parker is loved by so many.  There is no higher compliment from God than for Him to send His special child for Willis and me to love.  We are so thankful that our wonderful gift from God is Parker.  This is simply God's way of saying that he knows and trusts us with Parker and all of the special attention that he will need to meet all of his needs.  Although getting the job done for God to complete Parker here on earth may be a stuggle at times, and we may not understand full well the extent of why we are here...God's plan is never up for discussion! All of these days will pass so quickly and it won't be like this for long.   Instead of "race running" with his heart, soon we will be watching him running across the front yard, with his arms stretched out just to give us a hug.  Parker has calmed down now and it is 5:17 and we are starting him on some more fluids!  I covered Parker's hands with his nightgown cuffs so he won't be pulling the NG tube out on my watch....
Love In Christ,
The Crafts