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Hey Everybody...
       We have been so crazy busy this last week with appointments that I have only been posting pictures and not information.  So without further delay...We went to Charlotte for our new DOC Band on Thursday. As you can see from the pictures that we posted Parker acts like it's not even there. We had read  about the first 48 hours and how the children don't normally adjust until the 3rd day or so and Parker acts like he's had it all along.   I could not wait to decorate his band and I think that it turned out really cute!  Tonight though, we are having to leave it off because he has some redness that is lasting more than an hour and it's not supposed to.  So...I have a phonecall in to Cranial Technolgies to get there opinion.  The only other downside to the redness is the smell. It smells like wet doritos! No Joke!  Parker sweats so bad that he needs his head washed daily, and making sure that the band is properly cleaned as well.  Parker had his 3 month follow-up with his cardiologist and we actually made it through this appointment without an ultrasound!!!  This means that everything sounds GREAT!  And that makes us very thankful parents!  Parker's cardiologist and nurses could not believe how much Parker has grown!  They all said that he looks like a brand new baby.  Again...we will have a follow-up in 3 months with them and then hopefully see them twice a year!  We're elated!  Tomorrow we have Parker's MRI. It's never easy as a parent to give your baby over to complete strangers for any amount of time, but it's necessary!   Please be in prayer for us tomorrow morning because Parker can not have anything to eat after 6 AM !  So I will let you figure out the rest!  It's not going to be fun.  Parker is only allowed clear fluids until 9AM and then after that nothing!  We have to be at the Children's Hospital at 11:00am and then they will take him back at 12:45!  So tomorrow will be a challenge! 
They will be I.V. sedating Parker... so that will not be fun either!  We have an appointment on the 13th of this month for the results unless something comes available sooner.  The neurologist did tell us that if he saw something that needed immediate attention then he would call us himself!  So...we don't want a phonecall from him!   We also have the ENT appointment on Wednesday for Parker's blueness and then we also start PT and OT as well as Developmental Therapy on Thursday and back on the road to Charlotte again on Friday for our first adjustment!  AND...I am working in between all of Parker's appointments.  Fun Times Right?  Please continue to pray for our family.  We really need some "WHITE" on our calendars!!!   We will let you all know when we find out more details!
Love In Christ,
The Crafts