Wednesday, September 22, 2010

Frustrated...to say the least!

Hey Everybody...
This week has been extremely strange!  I have to apologize for not updating sooner but...I am still unsure of what to write.  Our appointment last Friday with Dr. Smith, Parker's neurosurgeon, was very confusing...and still is!  I'm not sure that I even want to comment on the things that he has brought to our attention.  Things that he has claimed "areas of concern for worry"!  Yep...he tossed out the "W" word.  I will say that the report he was given explains that Parkers' "Vein of Galen is excessively small"!   Last we spoke with Dr. Morgan, Parker's neurologist, we were told without a shadow of a doubt that "what was seen on the MRI, MRA and MRV was simply his right transverse sinus that was dilated twice the size that it should be.  Willis and I were so emotional leaving that appointment because it was such a huge sigh of relief.  Obviously, someone....I am not sure who at this point....but someone has their information crossed!  So...I am going to meet with Dr. Morgan at the Children's hospital tomorrow to speak about the changes in the reports, gain a complete review of the scans thus far and hopefully get some good sound answers by the end of the appointment!  We will be going forward with a follow-up MRI, MRA and MRV one more time in the next few weeks.  So we will be back at the Children's hospital for that.  Wednesday's are set aside for Parker's physical therapy appointments and our physical therapist explained last week that Parker's feet may need to be "taped" to help stretch the arch of his foot.  We spent a good forty five minutes today taping both feet off, and attempting to keep him from screaming the entire time....unfortunately that wasn't the case.  He cried almost the entire appointment!  But... both feet are successfully "taped" and we will be like this for two weeks.  If this does not work then they will cast his feet.  So please pray that these next couple of weeks that the "taping method" will stretch Parker's feet enough that he will not have to cast them.  We also have an appointment at MUSC's Storm Eye Center for Parker's eyes on October 11th.  Please pray that we will make the right decision about this surgery.  We have read so much about it online and there are some strong positives and strong negatives as well.  Anyway....I am going to try better this week on updating a little quicker! Thanks for checking in on our blog and remembering us in your constant prayers...
Love In Christ,
The Crafts

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