Wednesday, September 29, 2010
Friday, September 24, 2010
When we don't understand why things happen.....JUST BELIEVE!!!
Hey Everybody...
Yesterday was a whirlwind! I'm not quite sure what is going on but I do understand one thing and that is "God is in Control". We met with the neurologist yesterday for our "follow-up on confusion", and we are baffled to say the least! Dr. Morgan has explained to us that he really wanted another set of eyes on Parker's case and that was the reason behind sending us to our neurosurgeon for a second opinion. And together they have concluded that Parker is not out of the woods just yet. They both agree that Parkers' brain is definitely "complex"! Some Veins are too large where others are too small. As you grow your veins expand and grow with you. In Parker's case, the veins that are too large will not have room to expand because they are already too large. At any time, between now and age three, Parker's veins will erupt or leak which will cause a hemorrhage on his brain. They are telling us that Parker's brain will be considered High Risk until he turns three. Why three? Well, a child brain is considered fully developed at three. I'm not going to go into all of the details from the appointment because we really want to get second and third opinions. It has again left us completely confused. And I can't even begin to tell you the amount of stress and anxiety this adds to our plate. Willis was on the way to work and called me from his cell to let me know that he had just passed our church, and on our digital sign by the road, it read "GOD IS IN CONTROL"! Isn't it amazing how, even on our bad days when we think he's so far away, God always finds a way to simply remind us that He is right here beside us. I am so thankful to serve our God. We only ask that you pray for patience for our family. This is not going to be a quick fix. And two years sounds like forever...but we do it faithfully and with an open mind and spirit. God knows where he is taking us...and we are interested to see where it will lead. You know the doctor looked across the table at me and said "I know what you want from me...." and I said " what is that"? and he said "Closure". I looked at him and said "You know what...it's okay....because I know and trust that my God already has this figured out". We are just going to pray about this and take one day at a time, and enjoy every moment we have with our little man saying "BUBBLE"all day long. We just have to stay focused on all of the sweet little blessings that we do have instead of all the "possibilities" all the time. They are going to call us with an appointment at the children's hospital for his scans so we'll let you all know when that will be soon. We can't thank you enough for loving our little man....it means more than you'll ever know!
Love In Christ,
The Crafts
Yesterday was a whirlwind! I'm not quite sure what is going on but I do understand one thing and that is "God is in Control". We met with the neurologist yesterday for our "follow-up on confusion", and we are baffled to say the least! Dr. Morgan has explained to us that he really wanted another set of eyes on Parker's case and that was the reason behind sending us to our neurosurgeon for a second opinion. And together they have concluded that Parker is not out of the woods just yet. They both agree that Parkers' brain is definitely "complex"! Some Veins are too large where others are too small. As you grow your veins expand and grow with you. In Parker's case, the veins that are too large will not have room to expand because they are already too large. At any time, between now and age three, Parker's veins will erupt or leak which will cause a hemorrhage on his brain. They are telling us that Parker's brain will be considered High Risk until he turns three. Why three? Well, a child brain is considered fully developed at three. I'm not going to go into all of the details from the appointment because we really want to get second and third opinions. It has again left us completely confused. And I can't even begin to tell you the amount of stress and anxiety this adds to our plate. Willis was on the way to work and called me from his cell to let me know that he had just passed our church, and on our digital sign by the road, it read "GOD IS IN CONTROL"! Isn't it amazing how, even on our bad days when we think he's so far away, God always finds a way to simply remind us that He is right here beside us. I am so thankful to serve our God. We only ask that you pray for patience for our family. This is not going to be a quick fix. And two years sounds like forever...but we do it faithfully and with an open mind and spirit. God knows where he is taking us...and we are interested to see where it will lead. You know the doctor looked across the table at me and said "I know what you want from me...." and I said " what is that"? and he said "Closure". I looked at him and said "You know what...it's okay....because I know and trust that my God already has this figured out". We are just going to pray about this and take one day at a time, and enjoy every moment we have with our little man saying "BUBBLE"all day long. We just have to stay focused on all of the sweet little blessings that we do have instead of all the "possibilities" all the time. They are going to call us with an appointment at the children's hospital for his scans so we'll let you all know when that will be soon. We can't thank you enough for loving our little man....it means more than you'll ever know!
Love In Christ,
The Crafts
Wednesday, September 22, 2010
Frustrated...to say the least!
Hey Everybody...
This week has been extremely strange! I have to apologize for not updating sooner but...I am still unsure of what to write. Our appointment last Friday with Dr. Smith, Parker's neurosurgeon, was very confusing...and still is! I'm not sure that I even want to comment on the things that he has brought to our attention. Things that he has claimed "areas of concern for worry"! Yep...he tossed out the "W" word. I will say that the report he was given explains that Parkers' "Vein of Galen is excessively small"! Last we spoke with Dr. Morgan, Parker's neurologist, we were told without a shadow of a doubt that "what was seen on the MRI, MRA and MRV was simply his right transverse sinus that was dilated twice the size that it should be. Willis and I were so emotional leaving that appointment because it was such a huge sigh of relief. Obviously, someone....I am not sure who at this point....but someone has their information crossed! So...I am going to meet with Dr. Morgan at the Children's hospital tomorrow to speak about the changes in the reports, gain a complete review of the scans thus far and hopefully get some good sound answers by the end of the appointment! We will be going forward with a follow-up MRI, MRA and MRV one more time in the next few weeks. So we will be back at the Children's hospital for that. Wednesday's are set aside for Parker's physical therapy appointments and our physical therapist explained last week that Parker's feet may need to be "taped" to help stretch the arch of his foot. We spent a good forty five minutes today taping both feet off, and attempting to keep him from screaming the entire time....unfortunately that wasn't the case. He cried almost the entire appointment! But... both feet are successfully "taped" and we will be like this for two weeks. If this does not work then they will cast his feet. So please pray that these next couple of weeks that the "taping method" will stretch Parker's feet enough that he will not have to cast them. We also have an appointment at MUSC's Storm Eye Center for Parker's eyes on October 11th. Please pray that we will make the right decision about this surgery. We have read so much about it online and there are some strong positives and strong negatives as well. Anyway....I am going to try better this week on updating a little quicker! Thanks for checking in on our blog and remembering us in your constant prayers...
Love In Christ,
The Crafts
This week has been extremely strange! I have to apologize for not updating sooner but...I am still unsure of what to write. Our appointment last Friday with Dr. Smith, Parker's neurosurgeon, was very confusing...and still is! I'm not sure that I even want to comment on the things that he has brought to our attention. Things that he has claimed "areas of concern for worry"! Yep...he tossed out the "W" word. I will say that the report he was given explains that Parkers' "Vein of Galen is excessively small"! Last we spoke with Dr. Morgan, Parker's neurologist, we were told without a shadow of a doubt that "what was seen on the MRI, MRA and MRV was simply his right transverse sinus that was dilated twice the size that it should be. Willis and I were so emotional leaving that appointment because it was such a huge sigh of relief. Obviously, someone....I am not sure who at this point....but someone has their information crossed! So...I am going to meet with Dr. Morgan at the Children's hospital tomorrow to speak about the changes in the reports, gain a complete review of the scans thus far and hopefully get some good sound answers by the end of the appointment! We will be going forward with a follow-up MRI, MRA and MRV one more time in the next few weeks. So we will be back at the Children's hospital for that. Wednesday's are set aside for Parker's physical therapy appointments and our physical therapist explained last week that Parker's feet may need to be "taped" to help stretch the arch of his foot. We spent a good forty five minutes today taping both feet off, and attempting to keep him from screaming the entire time....unfortunately that wasn't the case. He cried almost the entire appointment! But... both feet are successfully "taped" and we will be like this for two weeks. If this does not work then they will cast his feet. So please pray that these next couple of weeks that the "taping method" will stretch Parker's feet enough that he will not have to cast them. We also have an appointment at MUSC's Storm Eye Center for Parker's eyes on October 11th. Please pray that we will make the right decision about this surgery. We have read so much about it online and there are some strong positives and strong negatives as well. Anyway....I am going to try better this week on updating a little quicker! Thanks for checking in on our blog and remembering us in your constant prayers...
Love In Christ,
The Crafts
Friday, September 17, 2010
Hey Everybody...
How about those Gamecocks! We are keeping our fingers crossed for a big "W" this weekend! Today we are taking Parker to the neurosurgeon. Dr. Lenwood Smith has asked to see us for a collaborative review of Parker's MRI's, MRA and MRV. We feel for sure that everything will be just fine...he only wants to double check the results and give us that extra thumbs up on Parker's brain. So....we are asking that you to please think of us this morning while we are in the appointment because you know how our appointments go sometimes.....BUT we are not claiming anything more than GREAT results! It is a little scary though listening to opinions all the time from specialists....they seem to have a way of telling you all the bad things that COULD happen instead of sticking to the facts! On a lighter note...Parker is almost completely mobile now. He is crawling all over the place and thinks that everything is called "MO"! We aren't quite sure what that means, but he obviously does! We have so much fun with him! And he keeps us laughing all the time. At our last check up we were told that we only need to gain six more ounces before we can move to a booster seat....so that is exciting as well. We are mailing back the heart monitor today so that is another PRAISE to add to our morning prayers. Parker has not had another episode like he was having before in his physical therapy so we are greatful for that. His cardiologist said that he would have liked for Parker to have had at least one episode so they could tell where it was coming from but so thankful at the same time that he hasn't. Anyway....we are going to the Zoo this weekend and enjoy some of the cooler weather. Thank you all again for thinking of us and being apart of our speacial story of our life with Parker! God continues to bless our family each and everyday. And we can't thank you enough for all of your support this year!
Love In Christ,
The Crafts
How about those Gamecocks! We are keeping our fingers crossed for a big "W" this weekend! Today we are taking Parker to the neurosurgeon. Dr. Lenwood Smith has asked to see us for a collaborative review of Parker's MRI's, MRA and MRV. We feel for sure that everything will be just fine...he only wants to double check the results and give us that extra thumbs up on Parker's brain. So....we are asking that you to please think of us this morning while we are in the appointment because you know how our appointments go sometimes.....BUT we are not claiming anything more than GREAT results! It is a little scary though listening to opinions all the time from specialists....they seem to have a way of telling you all the bad things that COULD happen instead of sticking to the facts! On a lighter note...Parker is almost completely mobile now. He is crawling all over the place and thinks that everything is called "MO"! We aren't quite sure what that means, but he obviously does! We have so much fun with him! And he keeps us laughing all the time. At our last check up we were told that we only need to gain six more ounces before we can move to a booster seat....so that is exciting as well. We are mailing back the heart monitor today so that is another PRAISE to add to our morning prayers. Parker has not had another episode like he was having before in his physical therapy so we are greatful for that. His cardiologist said that he would have liked for Parker to have had at least one episode so they could tell where it was coming from but so thankful at the same time that he hasn't. Anyway....we are going to the Zoo this weekend and enjoy some of the cooler weather. Thank you all again for thinking of us and being apart of our speacial story of our life with Parker! God continues to bless our family each and everyday. And we can't thank you enough for all of your support this year!
Love In Christ,
The Crafts
Saturday, September 11, 2010
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