Thursday, July 1, 2010

"Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace in the time of need" Hebrews 4:16

Hey Everybody...
  First of all I would like to start out by saying thank you to every single one of you that are praying for Parker.  There is power in prayer and we are living proof of it.  Willis and I just got home from the neurology appointment with Dr. Morgan and the results are as follows.  The posterior right ventricle is still dilated but there has been NO CHANGE or GROWTH to that ventricle.  This is "HUGE" which is straight from the mouth of Dr. Morgan.  He seemed very encouraged by the static nature of the ventricle.  In his opinion,  as long as the ventricle remains static we won't have anything major to be concerned about.  BUT....we do have something new to be concerned with.  In the radiology report, it mentions a level of concern for a new area in Parkers' brain, and it is called "the vein of Galen".  It is really hard to describe to you, without showing you, where it is in the brain.  But please feel free to google it if you'd like.  Primarily the vein of Galen is a cluster of veins that are tied into the venous system.  Parker's MRI does show a possible malformation in this region.  The only way to figure out what those veins are doing, would be to perform a CAT scan (which scares me with radiation, of course) and allow the dye to show the movement of the blood vessels and determine at that time the severity of Parker's case.  When blood vessels swell or become knotted, the pressures within the vessels may rupture and cause slow bleeds in Parker's brain. This, of course, is what we are trying to catch before it worsens.   Dr. Morgan did tell us that we do not have an emergency situation to the best of his knowledge.  He does want for Parker to have the CAT scan within the month, so that Dr. Lenwood Smith (Parker's neurosurgeon) can look more closely at the options for treatment.  If in fact the results show a true malformation of these veins, there are surgical procedures that can be performed to either remove the knotted portions of veins or removed the veins that are causing the problem.  Dr. Morgan then let us know that it is a far more invasive surgery as opposed to the "shunt" primarily because you are dealing with "veins" and that can get tricky.  He did tell us that there are some definate risks at hand.  If there is a malformation in the vein of galen and nothing surgically is performed to relieve the pressure on those veins, then it would cause a "brain aneurysm" at some point in Parker's life. This was a little scary to hear...but how wonderful it is that Parker's doctor's may have found something that could potentially lenghthen his life span here on earth with us.  And for that we are extremely thankful! SO....We are not out of the woods yet, but Willis and I are continuously encourged by God's GRACE and look forward to spending everyday that God allows us with our precious little man.  Parker is such an ennormous blessing to our family. Willis and I are continuing to be patient in the midst of our storms and know that Parker is safe a the feet of Jesus.  "Therefore I say to you, whatever things you ask for when you pray, believe that you receive them, and you will have them" Mark 11:24-
Love In Christ...
The Crafts

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