Hello...
I wanted to let you all know that our cardiology appointment went really well. Dr. Wienecke did another ECHO, EKG, and a detailed Ultrasound of Parker's heart and has reassured us again that Parker's heart is completely healthy and clinically looks and sounds great! Thank you Jesus! His thought on this episode is Parker's autonomic nervous system. This is the part of the nervous system that controls the feeling you get just before throwing up. Parker has all of the symptoms of this...flushed, sweaty palms and feet, shakiness, and scared. He just doesn't throw up! I know that sounds really gross but this is how it was explained to us. Dr. Wienecke will be sending us a "telephone monitor" sometime this week for Parker's heart. Even though his heart is healthy he still may be having some pressure issues. The telephone monitor is actually a portible EKG. When Parker is having one of his episodes we can hold the monitor up to his chest, press a button, and it's an instant EKG that will read out for the cardiologist. Hopefully, this will give them some kind of idea about what is causing them. Unfortunately, Parker is not having them on a regular basis so they may be hard to catch, and we would be more than fine if he never has another one...but at least we'll have this to fall back on for answers.
Our MRI today went really well. Parker did go a solid 8 and a half hours without food or water and it was a bit challenging at times. I am so proud of him though because at his age he should have been going crazy and he was just about as happy as one baby can be given the circumstances. The propofol injection went very well and Parker did not scream like he did last time. Thank you Jesus! I had a heart to heart with the doctor before we went down and he understood that the last MRI did not go so smoothly and this one had better be a far different experience for all of us. And that it was. Parker did cry when they administered the propofol but he didn't scream out thankfully. We have a major prayer request tonight though. Before our first MRI Dr. Morgan explained to us that we would have a scheduled follow-up visit with him to read the results to us and as long as we didn't hear from him or his staff that there would be no need for worry. If there was concern on his end then he would definitely give us a call instead of waiting for the follow-up exam. Today, while on the way home from the hospital, my cell phone rang and it was Dr. Morgan's office. Our follow-up appoinment was scheduled for July 30th and he is requesting to see us with Parker tomorrow at 2:00! We are extremely concerned about this appointment being rescheduled for tomorrow because of how it was explained to Willis and I before. Obviously he has seen something that needs some kind of attention and we can not be more nervous. I have knots in my stomach and tomorrow couldn't come soon enough. Please pray for us tonight and be much in prayer for tomorrow as we may be facing some difficult news. No matter how you look at things, the unknown will drive you insane. So tonight, we are trusting in the truth, and leaving this in God's hands, because this is yet another thing that is too big for our minds to wrap around. I know that God's plan is SO Perfect, and this is only another piece of God's love to draw us nearer to His Throne. Thank you so much for the love you all have shown to us through your heart felt prayers and sincere concerns....we need them more than ever right now.
Love In Christ,
T he C rafts
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Praying, praying, praying for you guys!
ReplyDeleteWe'll be anxiously awaiting a update on your sweet boy...and praying hard that the news is much better than you're probably anticipating. Big hugs!!
Shannon
I came upon your blog through a friend who posted on FB. I don't believe it was by accident but by God. I was so touched as I read your story. I will be praying and look forward to good news. I have a daughter who was born at 27 weeks and was told when she was 7 days old she wouldn't live through the day...but the awesome God I serve chose other plans. She will be 5 the October. Through it all I have seen God do great and mighty things. The witness she is of God's healing, grace, mercy and love. We serve a God who does what man says is impossible! Just know you have prayer warriors praying through the night and as you go for the appt. praying still. No weapon formed againstyou shall prosper. God has a purpose and a plan for your son and your family. Continue to trust him regardless of the circumstances, expect the impossible, and as my pastor preached Sunday declare that you shall not be moved. Thank you for the encouragement I found here through your words during a very hard season in your life. May God continue to use you to bless others as you have me! God bless! Trisha
ReplyDeleteAmy and Willis~
ReplyDeleteWe are lifting that precious little boy up to our Great Physician and praying when the CT scan is performed that " there will be NO suspicious findings" . Praying that you both have the peace and wisdom that only our Awesome God can and will provide. Praying that God will provide you with CLEAR answers and that Parker will continue to thrive and show us his muscles :) Love y'all!